At age 57 I still stutter severely. Only by using an
electronic aid, an Edinburgh Masker or a portable delayed
auditory feedback (DAF) device (The Pocket Fluency System
manufactured by Casa Futura Technologies), can I achieve the
degree of fluency to communicate effectively.
And that's what my speaking goal is: not total fluency, but
to be able to speak when I want to and engage my listeners so
they'll listen to and understand all that I have to say.
The way I understand my life is as a battle against silence.
I tried as a youth to play the role of the strong silent type: A
John Wayne, a mumbling Marlon Brando. Back then I was ashamed of
my stuttering. I would do anything -- even keep silent -- in
order to hide it. Everything I did revolved around speech,
whether I should talk and risk the embarrassment of stuttering or
whether I should just let the desire or the opportunity to speak
pass and protect myself by keeping silent. Every time I opened my
mouth, I put my identity on the line. I looked cool and seemed
intelligent when I wasn't speaking. But as soon as I started
stuttering I felt stupid and incompetent.
Speech for me has always been a means of connecting, a way
of making contact with another person. Speech, even stuttered
speech, affirms my existence. The silent kid in a noisy
conversation, I often feared that I would disappear into
nothingness unless I asserted myself by speaking. So I was
compelled to speak, even if only to grunt an affirmation or to
make some other "look I'm here" kind of noise.
As I matured I found that I wasn't the shy, quiet guy that I
thought I was or had to be. On the contrary, I love to talk, hate
being silent. Over time it's dawned on me that the fear-induced
silence by which I coped with my stuttering was a greater
handicap than the actual spasms of my disfluent speech.
What happens when I start speaking?
Speaking has always provoked chaos in my brain -- and this
chaos destroys my speech coordination. If I try to visualize
what's going on in my brain when I'm speaking, I picture myself
as a short-order cook making breakfast in a greasy-spoon diner:
The griddle is overheating, my thought processes are becoming
scrambled, the toast is burning, the egg yolks are breaking, and
the bacon is spewing hot grease into the fire. The cook, that's
me, is in a panic, trying to deal with every thing that is going
wrong and, in a frenzy of frantic motion, dealing with nothing.
I didn't start therapy until I was nine or ten. Had I had
therapy when the neurology of speech is still malleable, I might
have had a better outcome -- but that's water over the dam. As a
teen and adult, I've had all kinds of therapy: airflow, precision
fluency, and Van Riper-inspired stuttering modification. I worked
hard in some of these therapies. But I was always one of the few
people who did not achieve a satisfactory level of fluency even
inside the clinic, where fluency should come easy. I know for a
fact that speech therapy helps a lot of people. Though it didn't
do much for my fluency, it did give me an understanding of the
way speech works. Anything one learns about speaking is useful
knowledge, no matter how difficult it is to apply it.
In one way or another, in and out of therapy, I work on my
speech.
As a teenager I worried about the way I looked as a
stutterer. I watched how other people spoke and tried to copy the
speakers I admired. I worked to move my hands and arms so that at
least I would look like a fluent speaker. I learned to look
people in the eye when speaking and to not mask my quivering lips
behind the back of my raised hand.
Working on identity issues has been especially important. As
a youth I often thought of my stutter as my defining
characteristic. Over time, I learned to distinguish between being
"a stutterer" and "a person who stutters." I have many positive
characteristics. Stuttering is only one thing I do. While I
think the term "person who stutters" is awkward to say (and
prefer to use the word "stutterer" to describe myself), I
understand that I'm more than my speech -- my stuttering is not
the primary attribute of my identity.
To get to this point, I had to deal with my proclivity for
denial. While I couldn't hide my stuttering, I always denied that
it had any affect on me. There is a positive aspect to this kind
of denial. My stubborn refusal to recognize my stuttering as the
the disaster it was, enabled me to have a fairly normal childhood
-- I simply wouldn't accept -- despite the overwhelming evidence
-- that I had a disability. As much as possible I concentrated on
activities that I excelled at, which you didn't involve my
speaking. When my speech prevented me from doing something I
wanted to do, I turned off my emotions and convinced myself that
I didn't want to do it anyway. You can't go through life denying
your problems, however. Grief, shame, pain, and humiliation get
inside you, even if you deny their existence. Slowly they wore my
defenses down. In my early thirties I finally had to confront the
harm that denial was doing to me.
A wonderful gestalt therapist helped me confront my denial,
so that I could acknowledge my stuttering and, from the point of
openness and awareness, learn to deal with it. I have no use for
psychotherapists (the Freudians, e.g.) who claim stuttering is a
psychological disorder, a symptom of neuroses! But stuttering can
warp are personalities, the way we perceive ourselves and the
world around us. Many of us who stutter can gain self-
understanding from a good psychotherapist.
The self-help movement -- the National Stuttering Project,
Speak Easy in New Jersey, and the Canadian Association of People
Who Stutter -- further encouraged me to accept my stuttering.
Better still, the people in these groups encouraged me to take
steps to become the talkative person I've always wanted to me.
There is something magical about self-help groups. You're
constantly being confronted with your fears and self-perceived
limitations -- and in self-help you're constantly meeting people
who have overcome similar fears and limitations. So you begin to
wonder: if they can speak in situations that terrify me into
silence, then maybe I can speak in those situations too. And so
you do it, you speak -- and maybe even stutter. But the world
doesn't come crashing down. So you do it again ... and again --
each time with more confidence and success. And the fears and
limitations that once governed your life gradually disappear.
Because of the example of people who I've met in the various
self-help groups, I speak out at meetings, give public readings
of my writings, and have come to enjoy public speaking (which
absolutely amazes me!) I've even joined Toastmasters, a support group for public speakers. I still stutter when I speak in
public. But I know I can hold an audience, be informative and
entertaining-- and even make people laugh when I want to.
Here's the magic of the self-help movement: other people see
you doing the things you thought you could never do and they
start thinking to themselves, hey, if he can do it even though he
stutters ...or if she can do it even with her blocking and
repetitions, then maybe I can do it. And they do it. All of a
sudden, you've become a role model for others -- a wonderful,
empowering feeling.... And the process continues.
I don't want to sound as if I've solved all my stuttering
problems. Using an electronic aide can be bothersome. But it does
help my fluency, especially when I am using the techniques (slow
speech and voluntary stuttering) that I've learned in therapy.
What a difference the Masker and the DAF device have made
for my speaking. When my daughter was young, she chose me to read
to her most every night. In conversations I rarely even think of
myself as a stutterer. Objectively, I'm still disfluent. But, for
the most part, my stuttering doesn't bother me; nor does it seem
to bother my listeners. If it does, I explain about my
stuttering. That usually puts them at ease. Being open about my
stuttering puts me at ease as well.
Meetings can still be tough. But I no longer go to the
bathroom when people are introducing themselves. There are still
situations in which I'm wary of speech. Large audiences of
strangers still intimidate me, especially when I have to present
an argument that people are not familiar with and the subject has
emotional content. But I recognize such situations as presenting
new challenges. And I'm getting up my courage.
I still don't like my stuttering. I like myself, but not my
stuttering. It's not that I'm ashamed of my stuttering. I just
don't like to have to focus on how I'm speaking so much of the
time. But I am proud of the way I handle my stuttering, proud of
how far I've come in life even with my stuttering, and proud of
myself for breaking through my fear of silence. Yes! I'd love to
be more fluent -- and perhaps someday will. Not that it would
make me a better person, but it would make speaking less of a
challenge.
Speaking is my challenge and I'm facing up to it.
September 23, 1998